Calif. Roadmap Recommends Centralized Services for Event-Based Exchange
The California Health & Human Services Agency’s Center for Data Insights and Innovation (CDII) has developed a draft for public comment of a six-pillar Data Exchange Framework (DxF) Roadmap to identify and communicate a set of implementation priorities and proposed steps and milestones to implement them through 2027.
Established by Assembly Bill 133 in 2021, California’s Data Exchange Framework (DxF) is the first statewide Data Sharing Agreement (DSA) to securely exchange Health and Social Services Information (HSSI) among health and social service organizations and government agencies in California. The DxF requires hospitals, physician organizations and medical groups, health plans, other statutorily mandated entities to sign the DSA to exchange HSSI in real time starting January 31, 2024.
CDII developed this DxF Roadmap to identify and communicate a set of DxF implementation priorities and proposed steps and milestones to implement them through 2027.
The six priority areas are:
1. Event Notification
2. Social Service Data Strategy
3. Consent and Identity Management
4. Public Health
5. Impact Measurement
6. Participant Engagement
In the realm of event notification, the DxF Roadmap recommends that the state establish a common, statewide structure to communicate significant events that impact an individual’s health to all authorized DxF participants that request them to improve whole-person care.
Another recommendation is to explore establishing centralized or coordinated federated services to support Event-Based Exchange, including:
• Person matching to increase consistency and reduce burden of linking individuals on a roster to the subjects of events and notifications;
• Submitting, managing, and accessing rosters; and/or
• Submitting and routing events, and delivery of notifications.
In terms of a Social Service Data Strategy, the roadmap recommends establishing social service data exchange guidance for specified priority areas. CDII will assess existing social service data sharing requirements to identify barriers that could hinder data sharing across various programs. For example, for the Having a Child and Early Childhood priority area, this may involve identifying data sharing barriers between federal programs (e.g., SNAP and WIC) and Medicaid benefits for maternity care. To address barriers in program interactions, CDII will develop guidance around navigating potential legal barriers and ensuring interoperability between diverse data systems.
CDII will develop minimum viable data sets, including nomenclatures, coding (e.g., use LOINC/HCPCS) that support use case transactions and leverage existing data sharing agreements and standards.
The roadmap also recommends developing a statewide consent and digital identity management framework that allows individuals to provide, update, and revoke their consent to share protected Health and Social Service Information between their care and social service partners.
The DxF Roadmap includes recommendations to improve data exchange within the behavioral health system, including by developing guidance, standards, and shared services.
